Tuesday, June 22, 2010

cardiac whata huh???

our little beckam was born with 3 small holes in his heart. after an ultrasound, our family doctor said they were the type that would probably close up on their own though, so we left to portland assuming that's what would happen.....wrong! after discovering some serious bronchiolitis during our visit last summer, the holes in his heart were deemed to be more than the kind that just close up on their own. he had a 5mm hole, and we were sent up to calgary to see a pediatric cardiologist. dr. clegg has been awesome, and we have been up to the children's hospital numerous times for echos and ecg's and x-rays and check-ins with her.

 
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the hole has never seemed to cause him any pain or worries besides being winded a little easier than other kids his age, and dr. clegg guessed that it would probably start to close and cause no more hassle than a few more appointments with her. after our last appointment though, we got a call and were informed that beckam's heart issues weren't so black and white. the hole is fairly small, but his heart is quite enlarged which was somewhat confusing. so......beckam got scheduled for a little day surgery called a cardiac catheterization at the children's hospital for june 15th. we got all the details on the surgery and were rather excited to find out that we would know whether something more needed to be done to fix his heart or whether it looked like it would heal on its own in time. sadly, dust had finals during the scheduled surgery, so me and becks flew home early, my mom took off work, we stayed at my aunt's in calgary, and we headed over to the hospital for admitting at 5:30am! here is becks pretending to call dad to say good morning on the way over. he woke up so happy and was a total champ :) hello???

 

we got there by 6:30 and then hung out til the nurse came around an hour or so later. thankfully, they had some toys, and becks was all about his cool crib and his new clothes and the fun books they had!

 

 

he wasn't so into anything to do with doctors or nurses though (like usual - i think he's been to the hospital one too many times!). he hates the band-aid oxygen monitoring thing and the blood pressure thing and being hooked up to anything really!

 
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after the initial vitals were taken, we were ready to go! me and becks went into the surgery room, and i got to stay with him while they put him to sleep with the gas mask. he got to keep his soother and blanket which was nice, but i'm not gonna lie - it was really hard to see him on that big operating table with all of those machines asleep, and it was even harder to leave him there. i thought there was no way i'd be shedding any tears, but i'll be honest - a few fell on my way out of that operating room. all of the risks flash through your mind, and i was just overwhelmed with love for my little man with a hole in his heart!

 

here's our boy post-surgery. there were 2 little holes in his groin area where they went in with 2 little catheters which traveled up a main vein/artery to his heart where they then did measurements and took pictures to see what's really going on.

 

we got the report that he did great through surgery and that it was successful in that they found what they were looking for which was such a relief to hear. the doctor came in to the waiting room and gave us the report and then asked me to go to the recovery room to help calm our anxious little guy down. he was freaking out and couldn't really feel his legs from a shot they'd given him. he was all hooked up to everything he hates, and it was just really hard to comfort someone in so much distress! he looked so sad :(

 

he calmed down quickly after he was loose from all of the cords though, and he drank apple juice like a champ and loved his barney time and slowly returned to himself.

 
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he hated the washcloth taped over the IV, but he got used to it and was climbing around the crib like a monkey in no time! he ate crackers and wanted to play with the toys and was just as happy as could be - unless it was time to check his vitals of course!

 

 

i finally got him to fall asleep in my arms just before we got discharged, and he ended up like this on the bed. can you tell that we darken his room at home?!?

 

here we are - IV out, pj's back on, and ready to go home! it was a really long stay (we got to the hospital at 6:30am and left at 3:00pm), and we were all sooo excited to get outta there!

 
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our goldfish lovin fool did great on the way home, and you seriously couldn't even tell he'd had surgery besides his purple polka dotted face from the broken blood vessels! guess they really tore that tape off there cuz there was a certain pattern to them too. anyway.....it was so nice to have my mom with me there through everything, and becks did better than i expected, and we left with answers and a healthy happy little boy. overall.....success!

 
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and now......open heart surgery! dr. dicke (the surgeon) found that beckam's heart is quite enlarged and there is a higher flow of blood going on than they like to see which means they need to go in and close his little hole. we are really excited to have some closure to beckam's heart issues, but i'm not gonna lie...the stress level rises a little more every time i think about it. hopefully, it can be scheduled for dust's next break in school in september at which point we'll have a new little baby as well. the surgery is in edmonton, and we're supposed to plan on being in the hospital for 4-7 days so ya.....should be fun making all of the plans and arrangements!

 

above everything else though, i just love my little guy! he is seriously the coolest kid. he makes me laugh every day and brings sooooo much joy into our lives :) i feel so blessed to have him in our family, and i feel so blessed to have such great doctors and so much care and concern going into making sure that he'll have a healthy future. i know that things will work out for september, and i'm excited for his little heart to get all fixed up! whew! there is the report - sorry it was so long!

 
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let's get on with summer now!

25 comments:

Jeremy, Lana, Brenna ,Mason, Owen and Sadie said...

Wow! That is some scary stuff! I'm glad they figured it all out though. Good luck in September, we will be praying for everything to run smoothly!

Lyndsay said...

So good to here that he's being taken care of!!! I hope everything works out time wise for you guys. Are they thinking they'll be able to just suture it closed or will they have to put a device in? Anyways good luck with baby number two!!!! Sure nice to have a super mom to go and help you out at the appointment when dad's not available.

whitney said...

He'll do awesome in Edmonton! Me and Lins used to work on the peds cardiology floor at Stollery!

The Pratts said...

Wow, what an ordeal! Poor little guy. You must be so relieved though to know exactly what to expect and that it can be fixed! But the words "open heart surgery" are a little scary. How cute is he in his little scrubs though? Seriously, to die for!

Lana said...

Oh my goodness Lynds..You are such an amazing mom. How hard it must be. At least now you have your answers. We will be praying for you and the little man. Grandma is awesome as well. What would we do without them. It was so good seeing you. Good luck with baby #2.
Lana

LindsayB said...

oh lyns, what a tough kid and mom! i loved the first carseat pic when he looks all just woken up, my fav! i'm glad it went good and you know it will go great in edmonton. he'll be on the unit i used to work on and the dr's there are great! we shouldplay this week.

Kinsey and Dustin said...

Awww- what a little champ! Seriously! Looks like it was a long day- so glad it's over for you. I like the pic of Becks in his new hospital clothes- he looks so happy! Glad it all went ok!

Mandy said...

That's such a relief! Yea for Becks. The ACH is such a good hospital and we are very familiar with it too. I'm glad that things went well. You're so lucky to be blessed with such a supportive, loving family. You have such a great attitude and I know from my experience, it really helps.

Anonymous said...

What a strong little boy you have there. That picture of him cuddling with you on the chair is just precious. You can definitely see the love you have for your little guy. I am glad everything went well.

Anonymous said...

What a strong little boy you have there. The picture of you snuggling with him on the chair is just precious. You can definitely see the strong love you have for your little guy. I am glad everything went well.

J said...

That is one strong little boy you have there. The picture of you snuggling with him on the chair is just precious. You can definitely see the strong love you have for your little guy. I am glad everything went well.

Tahsha

J said...

Haha sorry Lynds I just wrote a million of the same comment. I didn't realize you had to approve it. I was wondering why I didn't see the comments I was writing.
Tahsha

Mandy Baker said...

awww i just cried when i read this... how sad and good job buddy! you did awesome!

Nicole W. said...

WOWZERS. that was emotional to read! poor little guy. not looking forward to that next surgery for you but atleast it will take careof it! big hugs to you and becks. love you guys!!!
xoxo

Becky said...

Hey Lynz! I found your blog on Kristin's. You are such an AMAZING mom! This post almost made me cry! Sweet little guy! What're you guys doing in Portland?

melissa said...

Aww, poor little guy. I'm glad he was a champ in his surgery and that you guys got the answers you needed. I'll keep you all in my prayers for the big surgery in September. Good luck!

Mackenzie said...

Aw! That is so sad to see your little man all hooked up eh? He's a total trooper, looks like he did fantastic! I'm so glad for you guys that they're going to take care of it, that'll lower the stress level! Good luck!

Ginger said...

What an amazing little boy you've been blessed with!! And how very, very lucky he is to have such an awesome momma (and daddy!!) to love him and take care of him so well. So glad that things went well and that you now know exactly what needs to happen next. Heavenly Father is aware of it all, which I'm sure has been a comfort to your family all along. Love you Lynz!!!

Amy said...

I got all teary eyed reading that. Poor little guy! It seems like you are handling things beautifully. But soon this will all be over and he will be as good as new! Good luck with everything!

Daya said...

I am so glad that everything went well. It's awesome that they figured it out and will be able toget the little guy all taken care of. It's nice that he is so young too. They handle the surgeries so much better when they are little. They recover so much faster as well. Have fun with your family!! I can't believe how much Beck looks like Dustin in that last picture. Holy cow!!

kelsey said...

i'm so happy that this first step went well. good luck with all the planning for edmonton, that will be nice to have steele and cindy up there though, to make it a little less stressful i'm sure!

i love that last picture of him at the pool, so stinking cute!

Ryan,Lish,Champ said...

What a trooper you have been! It makes me so emotional to hear this story of your little boy, and to imagine how I would feel if he were mine. I can only imagine how you must have felt leaving him for surgery. ...SO glad to hear things are looking up!

Linds said...

You are so brave! I would have been a complete mess the entire time. I hope and pray everything goes well with his other surgery, and that you can all put this behind you.

Christal said...

holy poor little guy but it looks like he is such a trooper! Good luck in september it will be awesome to have it fixed! My cousin had open heart surgery when she was a baby a long time ago but she loved to show us her scars from it! He is the cutest little boy!!and you are an awesome mom i can't imagine the stress you must be feeling about it! but you handle it well! Nice to have family to help out too! ttys

Marie said...

Poor little man! I'm so glad that you were able to get the answers you needed to plan his recovery so he can grow up to be healthy and strong. I feel so bad for him with all those tubes and things that scare him. That is so rough.